Emily McNamee was diagnosed with epilepsy when she was 10 years old and struggled off and on over the years with recurring seizures. While attending an Epilepsy South Eastern Ontario meeting, she listened to participants share their stories regarding transportation issues, particularly when they had no driver’s license. Emily was always caring and concerned for other people’s well-being, so it was no surprise to anyone that Emily mentioned her concern for these individuals numerous times and wondered what could be done. It upset her that many people living with epilepsy have limited options when it came to transportation, and Emily wanted to do something about it. Unfortunately, she passed away before she could fully advocate for change.

Emily died having a seizure on December 17, 2015 at the age of 25. To honour her legacy, in partnership with her family, Epilepsy South Eastern Ontario created ‘Emily’s Fund’, specifically to assist individuals with epilepsy and seizure disorders residing in the Southeast region in accessing medical appointments, ESEO programs/services, and resources. The service is designed to support community integration and enhance the quality of life for clients and their families/caregivers.  To contribute to Emily’s Fund, click on the ‘DONATE NOW’ button and select “Emily’s Fund” from the drop down menu. 

If you are in need of transportation to medical appointments in your region or to any of our services, please give us a call at 613-542-6222 or email Client Service Coordinator, Shannan at shannan@epilepsyresource.org. For more information about this service, please see link for Transportation service manual & subsidized bus pass application.